Más allá del diagnóstico; Disautonomía | Paulina Carbajal | TEDxTecdeMtySanLuisPotosi
El objetivo de esta plática es generar conciencia sobre el impacto que un diagnóstico médico tiene en una persona y en la sociedad, facilitando información clara y accesible sobre lo que es vivir con Disautonomía, especialmente cuando en México, la falta de infraestructura y de un sistema de salud adecuado dificulta aún más la vida de quienes viven con una enfermedad invisible. Cuando recibes un diagnóstico médico, nadie te entrega un manual que explique lo que vas a vivir, lo que perderás, lo que ganarás y el nuevo mundo al que tendrás que enfrentarte. Por eso la importancia de visibilizar sus síntomas, causas, médicos tratantes, estadísticas y las formas más efectivas para su diagnóstico. Lo que busco es que el sector salud y la sociedad pueda identificar síntomas relevantes, disminuir los tiempos de diagnóstico para tener un tratamiento optimo y una mejor calidad de vida. Esto, por una parte, ya que de la mano viene fomentar la empatía, el respeto y la tolerancia hacia las personas que viven con Disautonomía, creando así, una comunidad informada, de soporte y solidaria hacia el paciente y los cuidadores. Dar a conocer la Disautonomía es un reto diario, creando planes de acción, campañas de sensibilización y difusión, censos, cápsulas informativas, grupos de apoyo, eventos educativos, entre otros. Todo lo anterior puede sumar a que la sociedad tenga un mayor entendimiento sobre esta condición y como vivir con ella. Soy Paulina Carbajal Head Hunter, escritora de 1,2,3 por la Disautonomía y todos sus amigos, activista sobre la divulgación de la disautonomía en nuestro país y paciente de esta condición médica desde hace más de 10 años. A partir de 2022, junto con Aliadas por la Disautonomía, trabajamos para generar consciencia sobre el impacto que esta enfermedad tiene en los pacientes y su entorno. Mi principal labor es visibilizar esta causa y resaltar la importancia de unirnos para luchar por ella, donde todos seamos beneficiados al conocer de ella, así, de esta manera ser soporte unos de otros. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx
More from TED
- 8:31Don't Stop Now | Trinity Cagle | TEDxBooker T Washington SchoolTrinity Cagle is a student at Booker T. Washington High School who is deeply engaged both in and out of the classroom. She's involved in soccer, HFC, student council, and a variety of volunteer efforts that support her community. In her free time, Trinity enjoys reading, writing, crocheting, and painting—creative outlets that reflect her thoughtful and expressive nature.In her upcoming speech, Trinity will explore the impact of bullying and the power of labels in shaping how individuals see themselves and others. Inspired by the memory of a close friend who tragically lost his life due to the effects of bullying, Trinity’s talk is a heartfelt call to action. She hopes to spark conversations about empathy, identity, and the importance of breaking free from the labels that limit us. Hi, I'm Trinity Cagle and I'm a student from Booker T. Washington. I do many activities involving school and my community like soccer, HFC, student council, and volunteer work. In my free time, I like to read and write plus little hobbies such as crocheting and painting. But I would love to talk about things that have more of an impact on my and my peers' lives.In my speech, I want to share my experiences of bullying and how labeling affects society. My biggest inspiration for my talk is about one of my friends who sadly passed away due to the hardships of bullying during his life. I will talk about him and how single words that seem like nothing can alter a person's whole life. This is what I want to change, I want to talk about ways we can break those labels that restrict us from being us. So, I'm super excited to share lots more with you on April 3rd, 2025! This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx
- 10:13The Truth About FOMO | Isha Aryal | TEDxBooker T Washington SchoolIsha is a senior at Booker T. Washington High School with a passion for communication, leadership, and the arts. She’s an active member of Speech and Debate, the National Honor Society, and a dedicated student at Kripalaya Dance Academy.In her TED Talk, Isha will explore the often-overlooked consequences of FOMO—Fear of Missing Out—and how it shapes our daily decisions. From the way we form relationships to the habits that drive our consumption, her talk will shed light on the subtle but powerful impact FOMO has on our lives. Hi! My name's Isha, and I'm a senior at Booker T. I'm involved in Speech and Debate, NHS, and Kripalaya Dance Academy. In my Ted Talk, I'll be discussing the negative consequences of FOMO in every day life, such as how it affects our behaviors, relationships, and consumption habits. This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at https://www.ted.com/tedx
